So we are at the doctor's office a week after Alex's 1st chemo treatment. The chemo comprises of a potent cocktail of meds that include steroids, antibodies, antihistamines, and nasty poisons. It takes two days to administer, an 8 hour drip the first day and a 5 hour drip two days after. He sleeps though most of them, I read or knit. It is quiet and a sad place. There are small open rooms in a hallway with a huge station for personnel in center. Each room has a reclining lounge chair, a tv, an iv pole, and a small arm chair for the companion. There is a giant shelving unit piled with quilts, afghans, and fleece blankets. They are all home made and some say in memory of ---. I read them, fearing I may burst into tears. Anyway, we are waiting to see the doctor because his blood count was very low..almost no white cells. It was determined that he had a UTI and needed to go on an antibiotic, and get a look/see from the doc. He gave us the results from all the tests and they were good as far as containment of disease. He had two kinds of lymphoma at this point a new one being large cell, his general lymph nodes size had diminished and his heart was strong. We were releived, but concerned about the future and the treatments. I felt better, but not really. We have a battle ahead and he is sick from the first one, there are 5 more treatments to go. Oh my sweet man, he so does not deserve this.
this is for my family, friends, children, grandchildren, greatgrandchildren, so that they might know me better, I hope to inspire and help them live their lives. Also, this is for me to reflect, give outlet, to dream, to check in, make change and live true to myself.
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Tuesday, October 27, 2009
result are good, but not fair
So we are at the doctor's office a week after Alex's 1st chemo treatment. The chemo comprises of a potent cocktail of meds that include steroids, antibodies, antihistamines, and nasty poisons. It takes two days to administer, an 8 hour drip the first day and a 5 hour drip two days after. He sleeps though most of them, I read or knit. It is quiet and a sad place. There are small open rooms in a hallway with a huge station for personnel in center. Each room has a reclining lounge chair, a tv, an iv pole, and a small arm chair for the companion. There is a giant shelving unit piled with quilts, afghans, and fleece blankets. They are all home made and some say in memory of ---. I read them, fearing I may burst into tears. Anyway, we are waiting to see the doctor because his blood count was very low..almost no white cells. It was determined that he had a UTI and needed to go on an antibiotic, and get a look/see from the doc. He gave us the results from all the tests and they were good as far as containment of disease. He had two kinds of lymphoma at this point a new one being large cell, his general lymph nodes size had diminished and his heart was strong. We were releived, but concerned about the future and the treatments. I felt better, but not really. We have a battle ahead and he is sick from the first one, there are 5 more treatments to go. Oh my sweet man, he so does not deserve this.
Monday, October 5, 2009
Starting out on a sad note :(
Three weeks ago tomorrow, Alex, my beloved, reached up and felt a lump and large swollen area on his right shoulder. His arm had been paining him and keeping him up at night and hand would go to sleep. Needless to say, we were at the dr's office 2 days later, getting a biopsy 2 days after that and 5 days later we were back in the office getting the results. His lymphoma, that was discovered in 1992 and treated became active. The next morning he got his 1st chemo..an 8 hour drip, the next day he got a pet scan and a bone marrow biopsy, the day after that a shunt was placed under his skin that will be the port for which he will receive his drugs. Monday, last, he got another dose of Chemo that has kicked his butt. He is feeling tired, but not sick, happily, the huge mass has gotten much smaller, arm has gotten better as well as his hand he has been sleeping well. He went to work all week, never really complained, took naps in afternoon. It is nice to own your own marina and have an apartment there. What also is tremendous is all the love and support we have in our family, we could not do this without them. Jay, Wendy, you are the best!!!and all the guys that have pitched in at work, many thanks. The love and support of our family and friends has also been overwhelming. Our spirits have been lifted emencely. The doc says he has a 70% chance of remission and remediation. He slept pretty much all day today, he took a little car ride to the marina for about two hours, then came home and slept off and on while the Bills got beat by Miami. Tomorrow, October 5th, we get the results of the scan and bone biopsy, and his blood levels. We will have answers, not having answers has been rough, lets hope and pray that tomorrow's answers are not going to be catastrophic. Collectively pray all! Thanks
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